英国肌营养不良组织组织150人的跑步捐款目标为7万欧元

林宗雄

Good luck to Team Orange in the Great North Run
This Sunday 15 September over 150 people will be running for the Muscular Dystrophy Campaign in the Great North Run, and we'd like to take this opportunity to wish all of our runners good luck for the day, and to thank them for their hard work and support.

Our Team Orange runners are set to raise over £70,000 for the charity, which will help keep our vital research moving forward. As well as our very own Volunteer Fundraising Manager Sara Wilcox, and Development Manager Claire O'Connor, is Team Jed, a group of friends, family and colleagues of the Thirkettles, who also took part in the race last year, will be running. Jed Thirkettle has Ullrich Congenital muscular dystrophy, and the group are running to support research into this condition. Jed's Dad Michael is even running on his birthday. Now that's dedication!

阳虎山岗

林老师：辛苦了。真的希望我们这个协会也能拥有一笔巨资，如果这样协会就能为广大患者做很多有益的事情，如邀请专家讲座、申请临床试验、资助企业研发等。希望协会能在每年初发起一次捐款活动，也希望广大患者及家属能积极响应（我本人是一位包涵体肌病患者，于今年4月加入协会的，刚加入捐款2000，8月又捐1000，以后打算每年捐一点。这样写出来，不是炫耀什么，只是表明我的态度。）我们从协会里也学到了许多，也得到了许多，理应为协会为大家更为自己做点什么，当然捐款不在多少。我曾呼吁了几次，今天看到了这篇文章又有感而发，欢迎批评指正。